NICU Helping Hands

  • About Us
    • Meet our Team
    • Youth Ambassador Council
    • News and Press
    • Testimonials
  • Programs
    • The Angel Gown® Program
    • Project NICU
    • NICU Mom CONNECT
    • One-On-One Mentoring Program
    • Family Assistance Program
  • Resources
    • Local & National Support
    • Educational Support
    • Sibling Support
  • Ways to Give
  • Blog
  • Contact Us
  • Donate

Family Support for Fragile Beginnings

The Death of a Child: When Others Rank Your Grief

April 12, 2021 by Lisa R Grubbs 4 Comments

The Death of a Child: When Others Rank Your Grief

The death of a child is traumatic. When others rank your grief based on how long your child lived they diminish your experience and emotions. Ranking someone’s grief is wrong.

I recently read the article “What the Loss of a Child Does to Parents, Psychologically and Biologically”. Overall it provides good information about the toll the death of a child has on parents mentally and physically. However, before I made it two sentences into the article I stopped on this statement:

“Though it’s not a terribly common experience in the United States – about 10,000 children between the ages of 1 and 14 died in 2018 – the horrific potential for childhood mortality looms large. While reassuring, the numbers also make plain why this one specific type of loss is so feared, so painful, and so stigmatized.” 

What Deaths Are Counted?

The death of a child is traumatic, so why are children that die due to miscarriage, stillbirth, or ages birth to 1-year-old not included?

According to the CDC, in 2019 there were 9,173 children between the ages of 1 and 14 that died. In that same year, there were 20,291 infant deaths. Data currently available from the CDC also shows there are approximately 24,000 babies stillborn and 15-20% of all pregnancies end in miscarriage.

All these numbers represent the death of children and parents impacted psychologically and biologically by their death. When talking about psychological and biological effects on a parent after a child dies we cannot exclude some deaths. The death of babies and children at any gestation and age impacts parents.

Diminishing Others Grief

While the article discussed the biological, psychological, and social impacts that show the death of a child is traumatic, I was appalled by this quote:

One of the most salient predictors of trauma is the age of the child. Miscarriages and stillbirths are devastating and made worse by the fact that the loss is often diminished by the public perception that a fetus is not a fully-formed child. But “is it as devastating as the death of a child who has been alive for many years? Not to diminish this experience, but I think not,” Carr says.

The quote from Carr absolutely diminishes the experience of losing a child through miscarriage or stillbirth. This is a clear example of ranking someone else’s grief and is grossly inaccurate. It negates the emotions of the 29,464 parents in 2019 who experienced stillbirth and infant death, not to mention the emotions of 15-20% of women who experience the loss of their child due to miscarriage.

The Death of a Child: Who Decides What is Devastating?

Who decides what is devastating or hurts the most? 

The answer should always be – THE PARENT DECIDES. Nobody has the ability or the right to determine what is devastating for anyone else. NOBODY.

It matters when a baby or child dies, regardless of how short or long they lived. When others rank grief it invalidates the emotions of parents. It makes it difficult for them to share their feelings, feel connected to their community, and ask for support, counseling, or other mental health services they might need. It communicates that it is wrong to feel sad over the death of their child and to be quiet about their loss because it isn’t “as devastating” as another loss. When others rank grief it adds excruciating injury to the already broken heart of a parent.

The Death of a Child: Your Child Matters

There is no hierarchy of grief, and it should never be ranked. The death of YOUR CHILD matters, regardless of when or how they died. We know that you long for others to acknowledge the importance of your child’s life. Having a strong support network where you can share your feelings in a safe and open manner is paramount to the grief process. Sharing memories, hopes, dreams, and disappointments are an important part of grieving and healing. Resources and support services are available. In addition to NICU Helping Hands, Mommies Enduring Neonatal Death (M.E.N.D), Share Pregnancy and Infant Loss Support, Grieving Dads, and Miscarriage Matters, Inc. offer support groups, mentoring, and education.

You are not alone. If your child has died, we encourage you to seek out others who understand what you are feeling. Your grief matters and we are here to support you.


NICU Helping Hands wants to support and encourage your family today. Find online and in-person peer support today.

 

Filed Under: Bereavement, Featured Posts Tagged With: child loss, death of a child, grief, trauma

About Lisa R Grubbs

Lisa R. Grubbs is the Founder and Director of NICU Helping Hands. She has developed hospital and community-based programs both locally and nationally that offer support and education to current and post-NICU families, and families who have experienced the death of a child.

Comments

  1. Barbara Greer says

    April 13, 2021 at 3:16 pm

    Great article, Lisa…and so very on target! Thanks for sharing this.

    Reply
    • Lisa Grubbs says

      April 14, 2021 at 7:38 am

      Thank you for your support and encouragement Barbara.

      Reply
  2. Carol Preston says

    April 13, 2021 at 11:39 pm

    When my sister died of cancer at age 55 my mother was devastated even though she had watched my sister’s painful and two year fight as cancer consumed her. Ten years later my daughter had an ectopic pregnancy. She had known she was pregnant for less than two weeks. The loss of that child was also devastating. It still haunts even though she successfully had another and is due any day with a second child.

    Reply
    • Lisa Grubbs says

      April 14, 2021 at 7:43 am

      Carol,
      Thank you for sharing this with us and I am sorry your family has faced these deaths. It is my hope that you were surrounded by those that honored these losses and understood the grief your mother, your daughter and you experienced. I am so grateful for your involvement with our Angel Gown Program and what you do to make a difference in the lives of others.

      Warmly,
      Lisa Grubbs

      Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Urgent Gown Request

Check Out Our Page On The Mighty!

Share Your Story

From time to time, we share NICU stories from and by our community. We'd love to hear your story. Share Your Story

Recent Posts

  • Happy Birthday to my NICU Graduate!
  • The Death of a Child: When Others Rank Your Grief
  • Intrauterine Growth Restriction (IUGR)
  • What Does a Dietitian Do?
  • Congenital Heart Defect: 1 Out of 100 Mommas

Categories

  • Angel Gown® Garments
  • Bereavement
  • Birthday Celebration
  • Featured Posts
  • Parenting Preemies
  • Prematurity Awareness
  • Sibling Support
  • Uncategorized

Copyright © 2023 All Rights Reserved · NICU Helping Hands is a 501(c)(3) organization · Privacy Policy · Powered by PurposeWP · Log in · Top ↑